Skip to main content

Reuben Update

Quick update before my day spins out of control! 
Reuben is doing awesome!  Not quite eating and sleeping normally but otherwise he is back to himself.  When we went to the Dr on Friday morning he was really impressed by Reuben's progress and was surprised to tell us that we weren't going down for an MRI!  (By the way, very impressed both with our pediatrician and the Mercy staff and the communication between the two!)
People have asked how we are doing as parents.  I was paranoid for the first bit, but I settling down!  A lot of the first stress was due to the skills he lost there for a bit.  It is so helpful that Jordan's nephew and neice have been down this road.  They are both smart, happy, crazy kids so it is easy to expect no different here!  There will be a few milestones that I will be happy to hit.  One week without any seizures, one month, one year! 
Today is a big dig out day.  Laundry, groceries and a ton of thank you notes to those who helped us out!

Comments

Post a Comment

Popular posts from this blog

Chicken Stir-Fry Stew (From the book Nourishing Traditions)

1 lb chicken breasts cut into small pieces juice of 2 lemons about 1/2 C extra virgin olive oil or lard 1 cup peanuts 1 bunch green onion, sliced 2 large carrots, julienne 1 red bell pepper, julienne 1 C broccoli flowerets 2 cloves garlic, finely chopped 1 tsp grated ginger 1 Tbs Rapadura or sugar 1/4 tsp red pepper flakes 2 Tbs soy sauce 1/8 C vinegar 2-3 C chicken stock 2 Tbs flour mixed with 2 Tbs water Marinate chicken pieces several hours in lemon juice. Remove and pat dry. Mix chicken stock with vinegar, soy sauce, pepper flakes, ginger, sugar and garlic and set aside. In a heavy skillet or wok, saute chicken over olive oil until cooked through. Using a slotted spoon transfer chicken to a bowl and reserve. Saute peanuts a minute or two (add more oil if necessary.) Add peanuts to chicken. Saute onions, carrots and pepper for two minutes (add more oil if necessary). Add sauce mixture to veggies and bring to a boil. Return chicken and peanuts to the pan and mix well....
1 comment
Read more

Oh happy Day!

I am cautiously announcing a dairy victory!  (Cautiously, because I have declared victory before only to have to have to recant my declaration!)  I have been cooking with low reacting dairy products and have not noticed any effects on Reuben or Elise!  :)  I have been letting them have one meal with baked in dairy each day.  (We have skipped a day or two because so many of the recipes in my rotation are d-free now that I had to make an effort to put it in!)  I have been able to use butter, buttermilk and in a few recipes I used half dairy milk half non dairy.  Why is this so exciting?  First, we went to a picnic the other day and I didn't read labels.  I didn't have to be "that mom."  Second, I will be able to save some money!  D-free chocolate chips can be expensive, and real food butter substitutes are expensive.  Third, I don't have to experiment with nasty d-free cookie recipes any more!  If it never gets better ...
1 comment
Read more

Signs of the times

Jonah was sitting at the table yesterday and said "Mom, I was thinkin' 'bout somethin'.  I want a girlfriend." "What?" "I want a girlfriend? "How about I just be your girlfriend?" "No, I want a little one." "Where did you hear about girlfriends" "Gramma let me borrow her DVD when I had my tonsils out and that boy had a little girlfriend.  I want one." I cannot think of what he watched or what might have reminded him about this concept. Audrey was running ahead on our walk yesterday "Look mom!  I can run fast and I don't even have things in my ears!"  I assume this means earbuds that would connect to her ipod!
1 comment
Read more